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Happy Thanksgiving to everyone out there. We are getting ready to go to the hospital in a few minutes. We got the test results from the biopsy last night. Dani Jo did test positive for Hirshsprung's Disease. Basically she has a portion of her large intestine that does not have nerve endings in it that help move the waste through her body. At some point in the near future Dani Jo will have to have surgery to remove this part of her large intestine.
The doctor I spoke with last night said that if Dani Jo were able to get her feedings up over the next several days, she may get to come home and we would bring her back in a couple of weeks for the surgery. He thought she would do better with the surgery if we waited a few weeks to do it. If we did bring her home prior to the surgery, we would give her enimas every six hours at home.
If she cant' get her feedings up to par over the next few days, he would have to go ahead and do the surgery soon. In order to do the surgery, they have to do another biopsy where they take several tissue samples until they find normal tissue. This will tell them how long the part of the intestine w/o nerve endings is. If this is a very small part, they cut it out and reconnect the end of the intestine. If this is a large part, they cut it out and she would have to have a colostomy bag for a few months until the intestine healed from the surgery.
So, right now, we don't exactly know what will happen with the surgery. We trust in God that He will protect her throughout the upcoming days and weeks. Thank you all for your prayers and support. We love you all.
PS--Travis, this pic with the App State hat is for you. Enjoy it, cause it will be replaced with a VT picture soon. This pic is a few weeks old.
Joey, Amanda, Jordan, Jamie, and Dani Jo
4 comments:
Hey Dani Jo,
I just wanted you to know that I love you very much.
I hope you have a very good Thanksgiving day. I am very thankful that I have you for a special grand daughter. I am also thankful that you have the special mommy, daddy, and two big sisters that you have. I love all of you very much. I'm looking forward to us all being together next Thanksgiving Day.
I love you.
Nanny
Hey,Dani Jo,
Sure hope you had a good Thanksgiving with Mom, Dad and that you will be home before long so we can hold you and spoil you rotten
Love you Aunt Mary Sue
Joey and Amanda,
Dani Jo is beautiful. You guys have been in my thoughts and prayers. I hope you all can be home together soon. Lindsay and I know how that feels. Good Luck to you Dani Jo. Stay strong!
Mindy Tate
MFJLRSLHI, MISS DANI JO,
THIS IS YOUR MAMA AND PAPA ACROSS THE STREET!!
JUST WANT TO LET YOU KNOW WE ARE KEEPING UP WITH YOU.
GOD IS SO GREAT THAT COME 2008 HE IS GOING TO TAKE THESE BREATHING TUBES FROM BOTH OF US. CAN'T WAIT FOR YOU TO GET HOME. I GO TO DUKE WEDNSDAY 11/28/07.
WILL CHECK WITH YOU TONIGHT.
ALL OUR LOVE AND PRAYERS TO ALL OF OUR PRECIOUS LITTLE HEARLS AND MOM AND DAD TOO.
GOD IS WITH YOU,
LOVE MAMA AND PAPA JENKINS
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