Well, we are starting to get somewhere at least with her stooling issue. The Dr. came in this morning and finally did the repeat Hirshprungs biopsy. We should hear something by tomorrow sometime--then we can move forward.
Treatments:
If they find that it is Hirshprungs (depending on how large the section is), they would be able to just remove the section and reconnect. If it is larger than they can remove & reconnect, they wouldd do a different surgery that would result in her having a colostomy for a few months for her to get bigger for a more intense surgery.
If they find that it is not Hirshprungs, and that it is just a narrowing in her intestines, they could either do surgery and remove the "narrowing section" or they would continue with enemas and wait until she was a couple of months older and do another "barium enema" to see if the narrowing has improved.
Well that is all I know for today! Thank you all for your prayers! God is still in control!
Joey, Amanda, Jordan, Jamie, & Dani Jo Hearl
Subscribe to:
Post Comments (Atom)
6 comments:
Hello Again I just wanted to say how sweet Dani Jo looks. I cant wait until she comes home. Maybe soon after I can hold her. You all take Care and see you soon.
Love Melissa Culler
Hey Dani Jo,
Maybe you can get to come home in a week or two. Your room is all ready and just waiting for you!
I stayed with your two "wild" sisters yesterday and today! Poor Nanny is worn out! But I do have a real good time with Jordan and Jamie. I'm sure I'll have a good time with you too, when you get home.
You get a good night's sleep and always know that I love you very much.
Good night...sweet dreams...I love you.
Nanny
I am praying that its not HD but if it is Dani Jo has proven to be a trooper and she will be fine. Stay strong and have faith in God because He will see you through this ordeal. Since my daughter was diagnosed with CCHS it has only brought me closer to God. Have a wonderful Thanksgiving and I know that your family like mine is extremely thankful this year.
All the best,
Michelle
mother of Stefanie 4.5months old with CCHS vented with Bi-Pap at night
Amanda, Joey and Family,
I am so glad to hear that you are FINALLY getting some answers. I am so sorry that I have not been able to visit with you this week or last due to being out of town. We would all like to see you again and have you over to the house when it is most convenient for you, even if you are HOKIE fans. Ha Ha!! You are in our prayers daily and we know that above all else God IS in control..he has proved it to our family over and over. Please contact us if you need anything...we are just a short drive away.
Happy Thanksgiving to you all.
In Love, Prayers and Support,
Andy, Crystal and Cole
Hey Amanda,Joey,Kids
Just wanted to say my prayers and thoughts are with u all your kids are dolls talk to u all later
Steven Cain
Just wanted to say we love you all and have you each in our prayers. We serve a mighty God who can do all we ask.
Post a Comment