Dani Jo is growing fast!!!

Dani Jo loves her rice cereal and baby food! No wonder she is almost 11lbs!

Finally "Papa" Dickie holds me! Oh so gentle!

Hearl Girlz are at it again!

Hanging out in my cradle my Papa Hearl made for me! Thank you Papa!

Nurse Lisa holds me up for a quick picture. I am so making a fashion statement with my new handmade hat made for me from my Nanny.

Dr. Rubin just loves Dani Jo, he talks to her as if he were her own, just after he plays the harmonica for her!

Well, has a lot happened over the past few weeks. We took Dani Jo for a checkup for her CCHS with Dr. Rubin, her colostomy with Dr. Pranikoff and her Trach with Dr. Kirse on Thursday 21st. WOW what a full day. We thought it would be best for her to have all of her appointments all on the same day since they are all at Baptist in Winston. And besides taking her out is not an easy task.

Things to pack:
Diaper bag
Oxygen tank,
Pulse O2 monitor,
Suction machine,
Ventilator,
Suction catheters,
Colostomy supplies,
an extra one of everything.
Oh yeah and let's not forget the baby!



She did really well though! Lisa, one of our nurses, went with us. Couldn't really do it without our nurses. They have both really become a huge part of our family. We love them both dearly and they each bring something different in our home.

Dani Jo is a chunky munk--she weighed 10lbs, and 15oz. Therefore Dr. Kirse said that he thought she was ready for her colostomy to be reversed! YEA! She is scheduled to go in on Sunday, March 9 and is scheduled for surgery on March 10th. She will be there at least a week depending on how she recovers and as long as she stools on her own and eats well. Please say an extra prayer that week.

We have taken her to church 3 times and she has done really well! And of course everyone fell in love with her. It is really hard not to do. She is very precious. Jordan and Jamie absolutely have fallen in love with her also. Jordan has now learned to turn on her Oxygen concentrator and also how to put her tube vent (nose) on her trach when she comes off the vent. She has stepped up to the plate as a big sister. Well, sorry it has been so long since we last posted, but it gets a little hectic around here sometimes. I wouldn't have it any other way.

Dollars for Dani
"Papa" Dickie Crump is working on setting up a benefit fund raiser for Dani Jo in May. We would like for all to come. I will give more details once a date has been set. We are raising money primarily so that Joey and I can go to the CCHS Conference. This conference will give us more knowledge of CCHS along with new research for her disease. Dani Jo will not be able to go with us due to the high elevations on the plane--she is too young at this point. There is a yearly conference so maybe we would be able to take her when she is older. We will see what's new, alternatives for the trach, and new research. The exciting part is that we will meet 200+ sets of parents who have the same disease that Dani Jo has along with their CCHS kids. We are very excited about learning more and meeting other parents. Please pray that God will send the funds for us to be able to attend this conference. May God bless you all. We will post more later in the week! Thanks again for your love and support!

4 MONTHS OLD TODAY!

Whitney and I get some extra loving from our sweet little girl! Dani Jo is 4 months old today. She has her 4 months shots and physical on the 28th. We are so blessed to have this God sent gift! She is doing so well, and is smiling all the time as you can see in the several pics below! Thanks for all your prayers! Love to all!

Taking a look back!

Look what the Lord has done!

Our first born Jordan MarLee Hearl, was a joy as she was our first prize.

Then along came our second Angel, Jamie Lynnette Hearl, our special gift from God!

And now we have been blessed with our third blessing from God, Dani Jo Hearl.

Boy do these kids love "Tummy Time". These are some of my very favorite pictures. Keep praying for our family. We are doing wonderful, but we have all been sick. Thank you all for your visits and phone calls along with the dinners you have given. May God bless you and your family.

Our nurses!
I don't have a picture of our second nurse, Lisa with Dani Jo, but I have to say KUDOS to her! Her and Amber both have already become such a big part of our family and I pray that God allows them to stay with us for a very long time. We love you both and Dani Jo has already gotten attached to them as well!

Still Kicking!

Hi everyone! I know most of you check this daily and I apologize for not posting for a few days. It has definitely been a fast and full two weeks.

Dani Jo is doing great at home. She was coughing some yesterday and Tuesday so I ended up taking her to the Dr. yesterday. He checked her for RSV and thank God it was negative. He said she just had a Sinus Infection and put her on Antibiotic. She is much better today.

I also went to the Dr. yesterday and I have Bronchitis, Sinus Infection and fluid behind my ears. Jordan and Jamie are "I think" almost over their crud. We are all great other than that. Dani Jo is about 10lbs now and eating like a pig! She is smiling a lot and loves for her sisters to talk to her. I will try to post more later!

Grandma Jane gets a little snuggle time with her baby!

It's bath time again!

Daddy don't have a chance at all now with the crazy "Hearl Girls".

Dani Jo is still doing great! We are having some issues with her colostomy bag, but I think we have finally got it to stay for at least a day! Yeah! Dani Jo has 3 Dr's appointments on February 26 at Winston. I am hoping we will receive good news about her colostomy and maybe they will reverse her colostomy very soon! We are going to try to go to church on Sunday--First real "field trip" since her arrival home. We are very excited about getting back to some normal life. Please continue to pray for our family and that Dani Jo can stay away from sickness. We love you all and will continue to keep you all posted!

A BIG THANK YOU!
We just want to thank my sister Michelle and Tammy Haynes from church for lining up meals for our family since we have been home. Thank you are words that will never show our gratitude for this act of kindness. Our lives have definitely been hectic and this has been a relief on my family to not have to worry about meals while we get used to Dani Jo being home. It's a little bit busier with Dani Jo with all of her equipment, but are very blessed to have her home and to have friends and family willing to do what they can to help! Thank you all!

Love,
Joey, Amanda, Jordan, Jamie, & Dani Jo