Dani Jo has done terrific today! When I came in this morning, she had pulled her feeding tube out and was just as alert as she could be. She was breathing all on her own, which is a good thing! This would mean a step closer to being taken off the ventilator during the day or while awake and just put on the vent while sleeping! Dr. Parsons may do a trial run with her before discharge just to see how she tolerates off the vent while awake! We will pray without ceasing!
Because she had pulled her feeding tube out the Dr. said that we could try bottle feeding her a little. I bottle fed her 10cc and she did really well. She wanted more. "Baby steps"! We are getting everything setup at home for her to come home. She will have to have 24/7 extensive in-home nursing care for the first few months. Monday is a big day for her. She will be placed on her "home" ventilating system for a week or so here at Brenners to make sure her settings are ready for home care. She will also have her first Trach change on Monday and she will be one month old. Please remember us in your prayers. They are setting a tentative date for 2 weeks for her Homecoming. We are very excited however, very nervous. Our lives will be different with round the clock in-home nursing, so remember us as we journey our new lives.
A big thank you to everyone that has kept us in your prayers. When we come home we continue posting on this site to keep you all updated at home, since we really can't have visitors in the beginning.
Our love to all and thanks again for the prayers, emails, phone calls, monetary gifts, baby gifts & thoughts. We are basking in God Glory for our new miracle!!!
In Christ,
Joey, Amanda, Jordan, Jamie, Dani Jo
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Dani Jo,
It was so good to see you so awake and alert today. I am glad you are feeling so much better. It won't be long and you will be home. You better behave and stop pulling your tubes out! The doctors will do that when they are ready. I know you like to do things early but sometimes you just have to do what the doctors say. I love you bunches and bunches!
Love,
Aunt JennJenn
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