November 13 (9:00 PM)

Sorry we haven't posted in a few days. They switched Dani Jo over to the ventilator she will use when she comes home. She struggled a little bit to start with getting used to it. It's different from the ventilator she had been on since she was born. It will take a few days to get the settings all figured out.

She has had a distented (swollen and hard) stomach for the past few days. The pathologist is probably going to do another suction biopsy to test again for Hirshsprung's Disease. It's looking more and more like she does have HD considering the difficulty she has has stooling recently. We are praying that she won't have to have surgery on her small intestine and that it can be controlled with a stool softener.

They stopped her feedings today because of the swollen stomach. We didn't get to go to the hospital today. We had to stay home to meet the guys that brought all of the home health care equipment. Dani Jo's bedroom now looks like a hospital room with all of the supplies and equipment. She has a ventilator, suction pump, oxygen sensor and monitor, apnea monitor, oxygen machine, several oxygen tanks, batteries for everything, backup batteries, and about 20 boxes of medical supplies. This will get us through the first month. We will be taking up donations to put an addition onto her bedroom soon. :-)

I had to go back to work this week. I plan to take 2-3 weeks off when she does come home--hopefully, sometime next week, depends on the HD results. Thank you to everyone at CGMS for donating days to me this morning. You all are all very special to me.

I'll post some pics from Sunday and Monday, along with a video or two.

Please pray that Dani Jo's HD test results will come back ok.