Hi Everyone. This is Aunt JennJenn again. I would also like to say "Thanks" to everyone who came out to the benefit for Dani Jo. It was nice to see friends and family, see old faces and meet new ones. I am posting a few new pictures of Dani Jo and a couple of Jordan and Jamie. Dani Jo is doing really well and is always full of smiles. I would like to ask each of you to pray for Joey and Amanda to have a safe trip to Florida. They are leaving tomorrow morning to go to the CCHS conference. It is a yearly conference for families of CCHS patients. They will be able to meet parents of other CCHS kids and some of the kids will be there too. There will also be doctors giving presentations on new findings for CCHS. Joey and Amanda will come back with tons of information to share with all of us. They will return late Saturday night. Please continue to pray for all of them as we can never have too many prayers.
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