I'm hanging out at hospital with Dani Jo. I made Amanda go home and get some rest tonight. Dani Jo has been alert more today and has stayed awake longer. Still no luck when taking her off the ventilator. Her O2 sats drop pretty quickly when we do that and she has to go back on. CO2 numbers are still looking good while on the vent.
Bad news today with the swallow study. She is aspirating a lot when she eats. They have temporarily inserted a feeding tube down her nose into her belly. She will be able to eat solid foods by mouth but will have to drink fluids through the feeding tube. The Drs. will be determining whether or not they think she will need to have a feeding tube surgically inserted through the outside of her stomach. We may not know this for a couple of weeks. We may go home with the tube in her nose and see if she makes any progress with her aspirating before they decide on the surgical one. Our friends brought Jordan and Jamie down to the hospital for a few minutes tonight. First time all five of us have been together since Thursday night. It was nice to be a family again, if only for an hour.
Still looking at a few more days in the hospital I think. Please keep praying for her. She is definitely a fighter.
God bless,
Joey
Subscribe to:
Post Comments (Atom)
3 comments:
Joey,
Sorry to hear more upsetting news. I keep Dani Jo and the rest of you on my mind alot. Dani Jo is fighter, and it's a blessing to know she has two parents and two big sisters by her side 100%. I can remember when Katie was at Brenner's and some of those kids never had any vistors not even parents to come. Even though some can't visit for only an hour, you guys are so lucky and blessed to have the family and friends that you have for support. You are the strongest and most respected family that I know of right now.
Thoughts and prayers are always with you.
Mindy Tate
Dear Joey & Amanda,
I'm sorry to hear about Dani Jo! I read your blogs often to see how everyone is doing and the progress that she has made. My love to all and I will keep her in my prayers!
Love, Teri Harris
Dear Joey & Amanda,
We are so sorry to hear about Dani Jo's latest struggles. You are all in our prayers.
With many prayers, The Copenhavers
Post a Comment