I'm at hospital right now. Dani Jo is sleeping. I'm watching/reading the Yankees/Red Sox game on the Internet--not exactly the baseball package on DirecTV, but it will do for tonight.
Dani Jo has done well today. They put her back on the home vent about 6:00 tonight. She has done well so far. They took a blood gas at 7:30 to check her CO2 levels. They were good (41). No surgery today or next week.
Here's the upcoming plan. If Dani Jo transitions well back to her home vent, hopefully she can get home beginning of next week. We have to get some new equipment (pump and other things for the feeding tube). They are sending her home with the feeding tube in the nose. She will come back in two weeks to do another swallow study to see if she is still aspirating as bad as she was last week. She was pretty sick when she did the last swallow study, so they think she might do better on this one. We will schedule a surgery date after this test in two weeks. If she is still aspirating pretty bad, they will do the colostomy reversal and feeding tube (G tube) in belly in same surgery. If the aspirating is better, they will only do the colostomy reversal.
She is still not doing well off the vent when awake. She desats very quickly. Still no real ideas as to why she is doing this. It may take a while for her to get back to normal with this. They experimented with a "trach collar" today. A trach collar is a hose that pretty much hangs loosely around her neck over her trach. The trach collar is hooked up to a constant flow of air (with or w/o oxygen). This constant flow around her trach will help keep her from desatting so much. We tried the trach collar a few times today. She did ok with it. She didn't like the way it felt though--she fought with it a lot.
Well gonna go for now. The Yanks just won 4-1. Yeah!! Most exciting game I've ever read on the Internet.
I want to say thank you to that special person that blessed Amanda and I today. Thank you.
God bless,
Joey
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