SHES COMING HOME!!!!

Tuesday is the big day! Dani Jo is coming home! We have all 3 nurses ready to go.

I had a meeting on Wednesday with the Social Worker, the doctor and 2 nurses. I had asked to meet with them to express some feelings that we had. We were told 2 1/2 weeks ago that Dani Jo was medically ready to come home, however the doctors felt that we would get too tired and also they were afraid that Dani Jo may not be covered by insurance since all 3 nurses were not lined up at the time. This was the "assumption" by the doctor that she would not be covered.

We called our case worker at our insurance company on Tuesday of this week just to see if they would cover her if nurses weren't line up. Our case worker stated that "under no circumstances would Dani Jo "not" be covered". This was never confirmed 2 weeks ago it was just assumed. It was also said that this was explained to the social worker at the hospital last week. So we were a bit annoyed when we found this out, so I called for a meeting. I explained at the meeting that we were frustrated that Dani Jo could have possibly come home 2 weeks ago if the insurance information had been verified at that point.

I explained to all of them that I have arranged for Cana Rescue Squad to pick Dani Jo up either Monday or Tuesday. I was told that we did not have any nurses, however I explained that after talking with Amanda at Interim right before the meeting that we did have one nurse, and potentially a second, which was also explained to the social worker last week. I expressed that if Dani Jo was medically ready to come home, then I was requesting that Dani Jo's discharge be Monday or Tuesday. The transport set up for either of those days.

We have just received a phone call from Amanda at Interim with WONDERFUL news that we now have a 3rd nurse! By the 3rd week we should have 7 12's covered! God is still in control.

Please pray for us as we bring our long awaited bundle of joy home. She has been doing awesome all week. She has been smiling to all the nurses. The best news of all is that we have our sweet Dr. Parsons that will discharge Dani Jo on Tuesday. We are meeting with the Pediatric Specialists to go over her equipment on Monday morning at 10am and plan to bring her home at 9am Tuesday morning.

We just want to thank you all for your gifts, prayers, cards, calls, thoughts, and dedication towards our family in this our time of need. The road is all but over, our journey has just begun. Dani Jo has a long road ahead of her, but with our continued prayer and God's unconditional love, we will make it.

Dani Jo will not be able to have a lot of visitors throughout the winter months as she is more prone to respiratory infections due to the trach being an open airway to her lungs. As she grows and the days get warmer we hope to be able to take her out more and receive more visitors. We will continue to keep you all posted on our site with recent pics and her status. Thank you all again for your prayers. We love you all very much more than we can express!