Dec 4

It's cuddle time!

This is as good of family portrait as we can get for now....

Jamie & Mommy top and Jordan below!

Dani Jo had an okay day. She desated some today and Joey and I went to see her tonight and she desat more as the night progressed. The Dr. ordered an xray due to her belly being very hard. Once they got the xray back, it showed she had right much air in her intestines which was causing her stomach to push up on her lungs and therefore desats were the result. Her surgery is scheduled for Monday and it can't come too soon. The ENT surgeon is also going to cut away some granulated tissue around Dani Jo's Trach site. Hopefully we will have some closure to all her bowel issues soon.

The Dr's did an xray of Dani Jo's Kidneys and saw that she has Nephrocalcinosis. This is basically renal or kidney disorder in which calcium deposits form in the renal parenchyma and result in reduced kidney function and blood in the urine---kidney stones. The Dr says that she may grow out of this.

Our family is ready to be one. Sometimes it feels like forever, but I know that there are worse than us. We are blessed to be able to one day bring her home--and some along our journey have not. I know God has a plan for Dani Jo and we are excited to see what He has in store for our family. We have grown closer as a family since the beginning of this and finally realize the true meaning of family bond. I look at my kids a little different now, I appreciate the little things a little more, I listen a little more closely (even if the story seems silly), I lay a little longer with Jordan and Jamie at night, I read that book just one more time...I give an extra hug and kiss each night. I have learned that we shouldn't take our children for granted, because you never know when the next moment could be your last. Not that God is punishing us, just that He wants us to love as He loved...So no matter what God has in store for our family, I will live each moment in itself----

Until tomorrow,
Amanda